Join us to Take a Step & Cure A Genetic Tumor Disorder for this Four Year Old
July 25, 2012 Leave a comment
Regular readers of my blog have met her before. This is a picture of Jacqueline, myself and that is her mom in the background. The photo was taken recently after we attended The Blue Men show where she caught a huge marshmallow shot out into the audience. Everything about Jacqueline appears normal, but she has a genetic tumor disorder called Neurofibromatosis.
There are many side effects that come along with this disorder where nerve tissue grows tumors for life and there is no cure. Symptoms can include bone deformities, blindness, nerve pain and more. Among symptoms we know of that Jacqueline has the include the following:
- Myopic glioma, tumors that grow inside the brain and could result in visual impairment or blindness.
- Abnormal masses (one on her tongue and another on the back of her head.
- Bone issues: Her bone from her elbow to her wrist is curved.
Jacqueline is charming and imaginative and loves to dance. She is really good at it too! Today I am asking for your help to share Jacqueline’s story so we can create awareness about neurofibromatosis.
Register to join us this Sunday, July 29th at Minnehaha Falls in Minneapolis along with the Children’s Tumor Foundation for Jacqueline’s Team Walk Away to help raise funds to find a cure.
Being of service to others can be a healer, connector, teacher and friend for all people involved and always results in something good. I believe it is an important aspect of leadership. If you are unable to join the event, please donate to Jacqueline’s Team Walk Away in her honor and help make a difference.
Thank you again for your ongoing readership and support.